A documentary directed by David Kaye

In March of 2025, it was discovered that 17 year old Ella Coonen was losing her hearing. After getting hearing aids, we learned how little she'd always been able to hear. Two days later she texted me...

"Did you know wind makes sound?"

After a diagnosis of Ehlers-Danlos Syndrome and a rare genetic mutation, Ella has learned that she will fully lose her hearing. This film is her journey through sounds she's never fully experienced while she still has a chance.

The Sound of a Bucket List is a documentary directed by David Kaye. The project is funded by generous donations and is in production.

If you would like to know more about Ehlers-Danlos, please visit The Ehlers-Danlos Society Website.